Changes

=My Story=

Because of my [[Epidermolysis Bullosa| skin condition]] I never did any exercise as a child. By my early-30s I was overweight inactive and not terribly healthy. It was at this point I got my "wake-up call" in the form of a particularly severe migraine. This migraine was unusual in that the early symptoms included not only loss of vision but also impaired the speech center of the brain. I was unable to speak coherently, understand what was said to me, or even read and write. In many ways the symptoms mirror those of the stroke, and were quite frightening. This migraine did not last long and I recovered fully but it made me realize that unless I did something can to improve my health than the stroke was a very real possibility. I started off by joining an aerobics class and got into running as a way of getting to and from the class. My weight dropped from its high of 205 pounds and I started getting into longer distance running. I entered my first half marathon woefully unprepared having only run a maximum of 6 miles before. I was nearly the last one to finish the race competing for DFL with a 70-year-old woman. I could barely walk for a week afterwards, so naturally I signed up for the London Marathon. I finished the London Marathon in 1999 and moved to the US in 2000, where I continued running marathons. After a few years of marathon running I realized that speed was not my forte but I did have a lot of endurance. I found the world of ultrarunning rather more relaxed and over time found myself becoming competitive in the longer distances. My sister's book [http://www.amazon.co.uk/My-Life-His-Paws-Story/dp/1473635675 My Life In His Paws] gives far more insight into our skin condition than I ever could. It's also a great book for dog lovers, and shows how strong the bond can be between a dog and its owner as well as how much can be achieved with careful training.

=My Genetic Profile=

I've had genetic testing using [http://refer.23andme.com/s/jfsavage 23 and Me], and [[Genetic Testing| published an overview of my genetic testing results]].