8,153
edits
Changes
From Fellrnr.com, Running tips
→Suggestions for EB sufferers
* '''Humidity'''. I've found that while I love the desert, and low humidity environments, my skin is just the opposite. In winter I use a humidifier, which has helped my skin enormously.
* '''Acid Reflux Medication'''. I don't have a problem with acid reflux (that I know of), and being an ultrarunner I don't want to mess up my digestive system. However, many EB sufferers take medication like Nexium to prevent acid reflux damaging the throat.
* '''Detachol'''. With EB it's easy for tape or an adhesive dressing to pull the skin away on removal. [http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keywords=detachol+&rh=i%3Aaps%2Ck%3Adetachol+ Detachol] will deactivate the adhesive and allow the tape or dressing to be easily removed. I've not had any problems with Detachol irritating my skin and the only minor downside is you need to remove it completely before trying to stick anything in it's place.
=Fellrnr's Shake=
